Because this is my journal, allow me yet another mommy proud post. This past few days have been hilarious!
Ana Jain: We were having lunch the other day when she told me that sad juice tasted yucky. I had no idea what that was. I was trying to figure out what juice I had given her that she didn't like. I asked a few questions and she said, "you know, when you're sad, juice comes out of your eyes and sometimes gets in your mouth."
Tommy: Yesterday I got a call from Tommy's school. Being a slow walker I missed the call and they called Robert who in turn called me. The school principal had called to tell us that Tommy had been kissing kids on the arm. Robert and I talked to him last night and I really do agree with the school that this is not okay behavior for many different reasons. But I'm really glad that Robert got the call. I am afraid I would have burst out laughing! He is a 6 year old boy who was acting like a 6 year old boy. I'm just glad it didn't involve spitting...or worse!
Aleq: This isn't so funny. Yesterday the kids and I had to go to Walgreen's for medicine. On the way home, Aleq said that he was glad I was his mom because it is so hard to take care of me that the rest of his life will seem easy. I think he truly meant this as a compliment. I didn't answer. I couldn't because I was too emotional. This stung. My worst fear is that I am being a burden to others, especially my children. In my head I understand about all the wonderful blessings and lessons we are all learning, but my heart hurts at times. I wish with all my power that my kids had a "normal" mom but the fact is they don't. I know that nothing I do will change that. I just have to work with all my strength to be the best mom I can, and leave the rest to my Heavenly Father. I know that all my kids will be blessed for the sacrifices we are making and I hope that one day they will be able to see that. I hope I will.
Saturday, September 29, 2012
Thursday, September 27, 2012
Favorite Store
I get a pass on surgery #19! That is both a good and bad thing. Good because well...no surgery. Bad because Robert promised me that after 20 surgeries, we could go on a fun trip. Actually he said he would much rather have me have no more surgeries and we go on a fun trip anyway. I like that option better, too.
My nerve graft has had some time to work, letting the muscles around my eye receive signals from my brain and grow stronger. I have wondered for a while if the gold weight was necessary and Dr. Patel agrees. The weight was working it's way out anyway so he just had me come in to the office and pulled it out. Now we will just wait and see how my eye is working. So far so good but the dry air and winds of winter are coming so we will see.
After he had pulled the weight out, his assistant came in. She was disappointed that she had missed the 2 minute procedure and said she could have at least held my hand. He just looked at me and said, "She is a bit like the waiter who comes over to check on you after you are finished eating and you just don't have the heart to tell him it was ghastly!"
I really like Dr. Patel. He has a wonderful reputation and people come from all over to see him but you would never guess by talking to him. He makes me feel that I am his only patient and has been known to walk out to the waiting room to meet and chat with my friends or family members. He was recommended to me by the nurses at the U and I feel very lucky.
As for my health after my last surgery, I am doing OK. Not great. I have an infection, most likely from the catheter, and that is sapping my energy. But hopefully that will be done soon.
I just needed to get out today so Jain and I took a trip to Hobby Lobby. We walked around, put things in our cart and then took them out again, made wish lists for Christmas ornaments, and ended up with some pumpkin "costumes." Upon leaving, Jain told me that she loved that store and it was her new favorite. Oh no. She is 4 and has a favorite store? What have I done to that girl? Don't tell Robert.
My nerve graft has had some time to work, letting the muscles around my eye receive signals from my brain and grow stronger. I have wondered for a while if the gold weight was necessary and Dr. Patel agrees. The weight was working it's way out anyway so he just had me come in to the office and pulled it out. Now we will just wait and see how my eye is working. So far so good but the dry air and winds of winter are coming so we will see.
After he had pulled the weight out, his assistant came in. She was disappointed that she had missed the 2 minute procedure and said she could have at least held my hand. He just looked at me and said, "She is a bit like the waiter who comes over to check on you after you are finished eating and you just don't have the heart to tell him it was ghastly!"
I really like Dr. Patel. He has a wonderful reputation and people come from all over to see him but you would never guess by talking to him. He makes me feel that I am his only patient and has been known to walk out to the waiting room to meet and chat with my friends or family members. He was recommended to me by the nurses at the U and I feel very lucky.
As for my health after my last surgery, I am doing OK. Not great. I have an infection, most likely from the catheter, and that is sapping my energy. But hopefully that will be done soon.
I just needed to get out today so Jain and I took a trip to Hobby Lobby. We walked around, put things in our cart and then took them out again, made wish lists for Christmas ornaments, and ended up with some pumpkin "costumes." Upon leaving, Jain told me that she loved that store and it was her new favorite. Oh no. She is 4 and has a favorite store? What have I done to that girl? Don't tell Robert.
Sunday, September 23, 2012
Walk/Run
There were tents/booths set up all over offering things such as taking blood pressure, or support for teaching CPR in High Schools. And there were T shirts galore! Some had pictures on them, some had signs of stroke, some had big hearts, but my favorite was a group wearing shirts that read "Clot Busters".
All this was to help raise money for many things such as education. I really wonder where I would be if I had known more, the EMT's would have known more, the ER Doc would have known what was happening, or the Hospitalist or the people in the ICU would have had more education. Instead, even though I called 911 in time, I just sat for 10ish hours in the hospital, deteiorating with no meds or tests. It is obvious to me that this cause is urgent.
At first it was just my cousin and I who were going, but then my sister heard about it and my 3 brothers, my sister and I stayed in a hotel the night before, met up with my cousin, Emily, there and made it a really fun time just being together. I was so touched that they would all leave their families and spend their time doing nothing but making me happy. I loved it.
Usually when I am in big crowds I feel self conscious. I get stares, questions (not at all unwelcome), and looks of pity. But there I got hugs, laughter and groans about ailments from other survivors, respect, and the stares I got were full of understanding and encouragement. I loved being in that environment!
We will for sure be there next year and are already planning our T-shirt designs!!
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| Josh, Jed, Me, Matt, and Wendy and some of our swag. |
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| At the tribute tent. |
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| Emily and me. Hot! |
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| Yep, had all the symptoms. If only... |
Wednesday, September 19, 2012
Happy Birthday, Dad!
Yesterday was my dads birthday. He would have been 70. I wonder if my Grandma made a big carrot cake for him and they played catch to celebrate.
My mom sent out an email yesterday morning and some of us added to it, making a list of things we love and remember. It mostly made me laugh, some things were more tender but they all made me miss him more.
Mom:
Deer hunting with his dad and brothers and later his sons, sitting around on Sunday and laughing and talking with his family, eating fried chicken. a good hamburger (especially at Longhorn Cafe in San Antonio) lazagne, apple pie, pumpkin cake, his ugly black and red checkered shirt he wore when we were dating, keeping his pants up with his palms, playing baseball/soft ball/ football/soccer/golf/basketball with his kids or grandkids, going to all your different sports activities, as well as those of his grandchildren, going to all of your individual concerts/plays/assemblies/awards banquets/anything that honored any one of you, watching sports on t.v. especially with his kids, watching The Simpsons with you, watching or going to the movies or anything with you, watching Craig and Jodi's solos, writing Wendy's papers, going anywhere with G & G Burton, shooting his guns, taking you to Sun Valley, working in the yard (just kidding) going to movies, out to eat with me and rubbing my feet (at least I thought he loved it), his job with the Air Force, especially in Warner Robins, Ga, just the two of us living in Maryland-we missed you but it was such a great time for us, being near Craig and April in Maryland, long walks with Matt when he was in Jr. High, being in Park City anytime with you, having Matt/Jodi/Josh/Wendy and Kevin/ Jed and Lisa boomerang to live with us again.
Wendy:
Going out for breakfast, playing sports in the yard, singing "My Boyfriends Back", "Long Cool Woman In A Black Dress", calling me at work, cinnamon rolls, buying treats, going on walks/breaking in to houses being built, watching the Olympics, staying up late and watching shows Mom couldn't know about, walking to Leons Market during Sacrament Meeting to get a Coke, Huntsville Park, telling about every detail of your life and him listening like it was the most interesting thing in the world.
Kevin:
BELCHING is seriously my all time favorite memory, singing :Oh Your Red Scarf Matches Your Eyes", his snickering hee hee laugh as his neck would retract into his chest and he had that boyish grin like, "I just got caught."
Kaitlyn:
First person to ever let me drive a car. Not to mention it was the most expensive car anyone had, Zingers in his robe pocket. He hated the coconut kind but still ate them with us if we promised not to tell Grandma he had them, singing the highly inappropriate song, "Two Trailer Park Girls Go Round the Outside"-to this day I blare it when it comes on, treats whenever we NEEDED them, that included secret treats like eggnog that you didn't have to share, hitting a bucket of balls-even in the snow, wrecking on the scooter in Sun Valley, late night t.v. sessions and always reminding me that we could only watch The Simpsons if I told him when Grandma was coming so we could change the channel to Disney, biggest bear hugs, we were all his "favorites" and he made each of us grandkids believe it, the pure example of love and family, sickest toe nails ever and he was so proud of them, always with us and never will we forget. Love you, Grandpa!!!!
Craig:
The way he treated April, Yankee games in Balyimore and Tampa, eat as much as you want on vacations, touching the dashboard in the car when people apparently couldn't see it, pulling on the reigns in the car to stop, "How do you hide an elephant in a strawberry patch?", singing Happy Birthday off key.
Jodi:
He was magic and could make the moon disappear, "jogging" in Texas that was really walking and talking, throwing coasters in Chilis and then look all innocent, "People are no damn good", he popped my first zit by the polar bear pond (really cold pool) in Sun Valley.
Josh:
Talking to Coach Nelson when my confidence was gone, singing "Today Is Your Birthday" Beatles style, pork chops Pepsi, scallop potatoes, softball game fights, walk and talk, alway take care of mom first, eating out always makes you feel better, his kids were always the best at everything (even when we weren't, bringing a gun to work, Corpus Delicti=Corpus Christsti, barnicles, slipping jalapenos into hot dogs, Shanae hitting him and leaving a bruise, safety, best laugh ever, "Money for Nothin" . Jive Bunny and the Master Mixers
We miss you and love you, Dad, and can't wait to see you again!!
My mom sent out an email yesterday morning and some of us added to it, making a list of things we love and remember. It mostly made me laugh, some things were more tender but they all made me miss him more.
Mom:
Deer hunting with his dad and brothers and later his sons, sitting around on Sunday and laughing and talking with his family, eating fried chicken. a good hamburger (especially at Longhorn Cafe in San Antonio) lazagne, apple pie, pumpkin cake, his ugly black and red checkered shirt he wore when we were dating, keeping his pants up with his palms, playing baseball/soft ball/ football/soccer/golf/basketball with his kids or grandkids, going to all your different sports activities, as well as those of his grandchildren, going to all of your individual concerts/plays/assemblies/awards banquets/anything that honored any one of you, watching sports on t.v. especially with his kids, watching The Simpsons with you, watching or going to the movies or anything with you, watching Craig and Jodi's solos, writing Wendy's papers, going anywhere with G & G Burton, shooting his guns, taking you to Sun Valley, working in the yard (just kidding) going to movies, out to eat with me and rubbing my feet (at least I thought he loved it), his job with the Air Force, especially in Warner Robins, Ga, just the two of us living in Maryland-we missed you but it was such a great time for us, being near Craig and April in Maryland, long walks with Matt when he was in Jr. High, being in Park City anytime with you, having Matt/Jodi/Josh/Wendy and Kevin/ Jed and Lisa boomerang to live with us again.
Wendy:
Going out for breakfast, playing sports in the yard, singing "My Boyfriends Back", "Long Cool Woman In A Black Dress", calling me at work, cinnamon rolls, buying treats, going on walks/breaking in to houses being built, watching the Olympics, staying up late and watching shows Mom couldn't know about, walking to Leons Market during Sacrament Meeting to get a Coke, Huntsville Park, telling about every detail of your life and him listening like it was the most interesting thing in the world.
Kevin:
BELCHING is seriously my all time favorite memory, singing :Oh Your Red Scarf Matches Your Eyes", his snickering hee hee laugh as his neck would retract into his chest and he had that boyish grin like, "I just got caught."
Kaitlyn:
First person to ever let me drive a car. Not to mention it was the most expensive car anyone had, Zingers in his robe pocket. He hated the coconut kind but still ate them with us if we promised not to tell Grandma he had them, singing the highly inappropriate song, "Two Trailer Park Girls Go Round the Outside"-to this day I blare it when it comes on, treats whenever we NEEDED them, that included secret treats like eggnog that you didn't have to share, hitting a bucket of balls-even in the snow, wrecking on the scooter in Sun Valley, late night t.v. sessions and always reminding me that we could only watch The Simpsons if I told him when Grandma was coming so we could change the channel to Disney, biggest bear hugs, we were all his "favorites" and he made each of us grandkids believe it, the pure example of love and family, sickest toe nails ever and he was so proud of them, always with us and never will we forget. Love you, Grandpa!!!!
Craig:
The way he treated April, Yankee games in Balyimore and Tampa, eat as much as you want on vacations, touching the dashboard in the car when people apparently couldn't see it, pulling on the reigns in the car to stop, "How do you hide an elephant in a strawberry patch?", singing Happy Birthday off key.
Jodi:
He was magic and could make the moon disappear, "jogging" in Texas that was really walking and talking, throwing coasters in Chilis and then look all innocent, "People are no damn good", he popped my first zit by the polar bear pond (really cold pool) in Sun Valley.
Josh:
Talking to Coach Nelson when my confidence was gone, singing "Today Is Your Birthday" Beatles style, pork chops Pepsi, scallop potatoes, softball game fights, walk and talk, alway take care of mom first, eating out always makes you feel better, his kids were always the best at everything (even when we weren't, bringing a gun to work, Corpus Delicti=Corpus Christsti, barnicles, slipping jalapenos into hot dogs, Shanae hitting him and leaving a bruise, safety, best laugh ever, "Money for Nothin" . Jive Bunny and the Master Mixers
We miss you and love you, Dad, and can't wait to see you again!!
| We didn't even ask, Aleq just gave him kisses out of the blue. |
Monday, September 17, 2012
Eye
Last Tuesday, Jain and I were playing and accidentally bumped heads. It didn't hurt either of us and in fact we laughed, said bonk!, and went right on playing.
But later as I was washing my face, I found this.
Notice the gold coloring? That is the gold weight showing through. Yummy. But seriously, how do I not set off metal detectors? I thought it would just heal up on it's own. But this is from last night.
Healing yes, but the weight is more visible now. So I sent these pics to my Doc and he confirmed it. Surgery # 19 to replace the gold weight. He said that while it was not an emergency, this week or next would be good. I'm still recovering from # 18! Luckily this procedure is done at an out-patient surgical center and although not fun, relatively minor.
Robert is dreading the bruising again because people think he did it to me and give him strange looks. I have very little sympathy as I am the one with the bruises!!
I'm so lucky.
But later as I was washing my face, I found this.
Healing yes, but the weight is more visible now. So I sent these pics to my Doc and he confirmed it. Surgery # 19 to replace the gold weight. He said that while it was not an emergency, this week or next would be good. I'm still recovering from # 18! Luckily this procedure is done at an out-patient surgical center and although not fun, relatively minor.
Robert is dreading the bruising again because people think he did it to me and give him strange looks. I have very little sympathy as I am the one with the bruises!!
I'm so lucky.
Saturday, September 15, 2012
Solution
This is something I remebered this morning and It's one of the many sweet things I want to remember always.
When I came home, Jain was only around 20 months old, still small enough to require an afternoon nap. As we get older we may not require them but instead wewant crave them. She still didn't know enough to want one. So every day when I told her it was nap time she would start to cry.
Now, knowing that carrying her was impossible, this could have been a bit of a problem. But again, we were blessed and my darling little girl would start to cry, walk to her room, stand by her crib and wait for me to catch up, and then hold out her arms for me to awkwardly lift her into her crib, still crying the whole time.
Usually by the time we had "sung" (my vocal chords are jacked up) and did kisses and loves her crying had stopped.
My little girl has such a sweet spirit and when that was combined with the Holy Ghost, it provided the perfect solution for us.
When I came home, Jain was only around 20 months old, still small enough to require an afternoon nap. As we get older we may not require them but instead we
Now, knowing that carrying her was impossible, this could have been a bit of a problem. But again, we were blessed and my darling little girl would start to cry, walk to her room, stand by her crib and wait for me to catch up, and then hold out her arms for me to awkwardly lift her into her crib, still crying the whole time.
Usually by the time we had "sung" (my vocal chords are jacked up) and did kisses and loves her crying had stopped.
My little girl has such a sweet spirit and when that was combined with the Holy Ghost, it provided the perfect solution for us.
Friday, September 14, 2012
Angels
This past week I have once again been on the receiving end of service. I don't know why but I am still unused to this. This time I have justified it by telling myself it's mostly for Robert. That's a lie because he wouldn't mind frozen pizza every night and as long as he doesn't catch diseases, the house is clean enough. But he knows having a clean house calms me and he knows it won't do to have pizza every night. I mean, you have to add in some McDonalds to keep it healthy, right? So he has been cooking, cleaning, running errands, and even massaging my feet. He already does much more than most men but this past week I think he is better than Superman. And besides all the things involved in keeping our household above water, he always manages to make me laugh when pain meds make me angry, tickle my back to divert my attention from the pain, and hold me close when I need some extra love. After all, as he says often, there's always time for 30 seconds of love.
My kids have been unreal, too. Holding my hand when I walk (whether I need it or not), cleaning up more, and just helping anywhere they are able. Two nights ago Jain wanted to do her "homework" just like her big brothers. Without skipping a beat, Aleq sat down at the table with her and read with her for ten minutes. When they see me doing something that they don't like, such as getting a glass out of the cabinet or something just as dangerous, I have been told that I am at a 1 and if they get to 3, I will go to time out.
Friends, family, and ward members have taken care of us all. My sister, Wendy, not only came to a 9:00 a.m. game, but took Jain home with her to let me get some rest. I have received calls and support from far away family, even Chick Fil A from my cousin, Amy. Roberts parents have gone to games, given rides, babysat, and made meals. The whole Stallings family, especially Karen, has been heaven sent, driving my kids to school every day and keeping them after, driving me to my follow up Dr. appointment, making sure my mental health is being looked after, taking late night medical calls, and generally filling in all the gaps. And this ward is wonderful! I have had visits, meals, and my visiting teachers, Carly and Laura, and Carly's son, spent nearly 3 hours cleaning my whole house yesterday and then brought me in a fabulous dinner. Then between cleaning and dinner, Carly took Jain home to play with her daughter and Laura got us lunch and we got to chat while we ate. And my mom was freaking out about being so far away so people in her office fasted with her and then went to the temple with her.
I am still uncomforatable accepting charity but the people around me act as if it is the easiest thing in the world to help me. They are the kind of people who seem to love allowing The Lord to put them to work. I never get the feeling of sacrifice or "I don't want to" although I know it is not easy for them or their families.
These people and sooo many others may never know how much I love them for helping, not just me, but my family. While accepting help is no picnic, I am so thankful that there are such sweet people in this world.They are truly Heavens messengers. I want to be just like them when grow up!
My kids have been unreal, too. Holding my hand when I walk (whether I need it or not), cleaning up more, and just helping anywhere they are able. Two nights ago Jain wanted to do her "homework" just like her big brothers. Without skipping a beat, Aleq sat down at the table with her and read with her for ten minutes. When they see me doing something that they don't like, such as getting a glass out of the cabinet or something just as dangerous, I have been told that I am at a 1 and if they get to 3, I will go to time out.
Friends, family, and ward members have taken care of us all. My sister, Wendy, not only came to a 9:00 a.m. game, but took Jain home with her to let me get some rest. I have received calls and support from far away family, even Chick Fil A from my cousin, Amy. Roberts parents have gone to games, given rides, babysat, and made meals. The whole Stallings family, especially Karen, has been heaven sent, driving my kids to school every day and keeping them after, driving me to my follow up Dr. appointment, making sure my mental health is being looked after, taking late night medical calls, and generally filling in all the gaps. And this ward is wonderful! I have had visits, meals, and my visiting teachers, Carly and Laura, and Carly's son, spent nearly 3 hours cleaning my whole house yesterday and then brought me in a fabulous dinner. Then between cleaning and dinner, Carly took Jain home to play with her daughter and Laura got us lunch and we got to chat while we ate. And my mom was freaking out about being so far away so people in her office fasted with her and then went to the temple with her.
I am still uncomforatable accepting charity but the people around me act as if it is the easiest thing in the world to help me. They are the kind of people who seem to love allowing The Lord to put them to work. I never get the feeling of sacrifice or "I don't want to" although I know it is not easy for them or their families.
These people and sooo many others may never know how much I love them for helping, not just me, but my family. While accepting help is no picnic, I am so thankful that there are such sweet people in this world.They are truly Heavens messengers. I want to be just like them when grow up!
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